Tag » Spina Bifida

From Fear to Faith

Three years ago on October 28th we received Luelle’s diagnosis of Spina Bifida.

I would tell my past self this if I could…

“You are about to experience some of your darkest fears and deepest joys. 795 kata lagi

Our Baby Girl

Woman charged after man with maggot-filled foot wounds dies

HARRISBURG, Pa. (AP) — A former Pennsylvania caregiver has been charged with homicide after authorities say she failed to properly treat a man with a congenital defect who died after his foot wounds became severely infected and filled with maggots. 113 kata lagi


Today, People with Spina Bifida Go #BeyondAllLimits

Today, October 25, is Spina Bifida Day.  As is common among disability awareness and advocacy organizations, the Spina Bifida Association is emphasizing ability, courage in meeting challenges to live life to the fullest, to dream and achieve.   67 kata lagi

Disability Awareness And Appreciation

World Spina Bifida Day

Today (October 25th) is world Spina Bifida day. I was going to do a typical awareness post, but nobody really is interested in the numbers behind the disability… so I am instead going to give you a glimpse into our life. 862 kata lagi

What Is a Baby?

Twenty-eight years ago today–and I remember well my horror at the time, the parents of a child known forever as Baby Doe apparently decided that he was not a human being deserving of love and care when they… 765 kata lagi

Life Issues

Permanent (and how scary that word is)

Hey guys!

Sorry it’s taken me so long to update, life’s been a bit hectic. I was finally set up with a consult with a colorectal surgeon. 187 kata lagi

Chronically Ill

High school students create wheelchair for girl with spina bifida

St. Louis, MO (KMOV) — A group of high school students jumped in to save the day after a girl living with spina bifida found out she was too little for a wheelchair. 251 kata lagi