Tag » Lupus

My Obsession with Lab Results

Recently I saw my rheumatologist who wanted to run an ANA test to see if my disease was still active.

She had not seen me in two and a half years because I’ve been fine. 328 kata lagi


A rant. But necessary.

If I get told by a doctor or my family ONE more time “did you read that online or something” and see their eyes roll in response to me explaining how my conditions work and treatments suggested, I’m going to go apeshit. 720 kata lagi


Dear Auto Immune Diseases


I’ve had enough bad days please give me a good days!  I’ve felt horrible for days and I don’t think I have a part of me that doesn’t hurt.   25 kata lagi

Journey With Me Mini2z


I’m brave because I transferred to the commode four times today. I’m brave because it exhausted me, and left me in pain, but I did it anyway. 182 kata lagi

Chronic Illness

AIP: The good and the bad

Today is day 9 on AIP and I have to say the flare I was in when I started does seem to be easing a little. 428 kata lagi



So, I have been unofficially diagnosed with POTS. The cardiologists want to do the tilt table test in a month to confirm, just so they can say with certainty that my status as a hospital inpatient isn’t going to give them a false positive result. 374 kata lagi

Chronic Illness

Neovacs Receives First Regulatory Approvals for a Phase IIb Trial of IFNa-Kinoid in Lupus

NEOVACS, a leader in active immunotherapies for the treatment of autoimmune diseases, today announced that it has been granted first approvals by regulatory agencies and ethics committees in several European countries for a Phase IIb clinical trial of IFNα-Kinoid in Systemic Lupus Erythematosus (SLE) or lupus. 456 kata lagi