Tag » Hydrocephalus

I really do...

I mean I REALLY love someone with Spina bifida.  I would scream it from the rooftops if I have to.  Holly is so amazing, so strong, so brave, so beautiful.   479 more words


Raising money

Hi everybody!

To anybody who have read our posts, thank you! Just want to give an insider of what its like with Spina bifida in the family and to be honest.. 240 more words


Raising money for Holly

Right now I have set up a GoFundMe page to help raise funds so we can get Holly a Firefly Scoot.

Its not just a “seat with wheels” its independence for Holly once she is ready to be on the move. 84 more words


Fast forward six months

Holly has been through alot in the last six months but it has been a blur. At the beginning it was oxygen, nasal specs, intermittent catheter & adult leg bag swinging from her tiny leg, hooked up to sats monitor and trying to run after an 18 month old and a 1 month old. 269 more words



Holly was born 29th September 2014 by C-Section. 9lbs 15oz at 37 weeks gestation thank you gestational diabetes

She had her first operation at 4 hours old – to close up her back. 281 more words


At the beginning

Friday 23rd May 2014

It was time for our 20 week anomaly scan.  Second pregnancy, a slight shock but who isn’t when they find out they are expecting again? 533 more words


We All Need Somebody To Lean On

Tomorrow is the beginning of a new chapter.  Along with other brain tumor survivors, caregivers and the CTBTA, we are having our first Patient and Caregiver Outreach meeting.  207 more words